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| PERSPECTIVE |

It's a multi-functional
building that brings to us -- to the state of Nebraska and the people of the
region a state-of-the-art research facility, a state-of-the-art cooperative
care center...
As construction neared completion, Dr. Beyers Shaw and a
group of former patients opened the $61 million Lied Transplant Center at
the University of Nebraska Medical Center in Omaha.
2, 1, fall.
Beyond the brick, mortar, and technology is the philosophy
of incorporating patients and their care partners into the medical team.
[Dr. Beyers Shaw Jr., Chair, UNMC Dept. of Surgery] "The
basic idea is that you train a family member or a friend. The patient has
to identify somebody that will be their cooperative care partner, and you
really make them a part of the care team and you have them do some of the
things that traditionally a nurse would do but maybe don't require the level
of skills the nurses are actually trained to do."
Of the 12 floors within this building, four floors are dedicated
to cancer and neuroscience research. But the heart of the Lied Center is the
four floors of cooperative care suites.
These are the cooperative care rooms for the transplant patients.
This is their sitting area here for the family. They have a television and
VCR behind you.
[Dr. Shaw] "It's actually a very old concept. In fact,
when people who have visited third world countries hear about what we're going
to do, they say well, that's already the way they do it in third world countries.
The big difference, of course, is that in third world countries they do it
because they can't afford to do it otherwise and there aren't enough trained
people to help provide the care and it's far from an ideal situation to have
the family -- you know, operate on someone and give them back to the family
and say here, good luck. In this situation, we obviously are going to take
that many steps forward."
In February after a couple of months of additional housekeeping
and a final inspection by anti-germ specialists, the center admitted patients.
[Donna Kavalier] "It kind of pulled a little bit but
I just kept pulling and it all of a sudden -- you could feel it give and then
I didn't have any problem.
"
[Nurse] "Sometimes just grab another saline if that
happens and try it again. If you still have trouble, let them know out there."
Donna Kavalier asks a lot of questions. She has to. Donna
is the caregiver for her husband, Rich. He has non-Hodgkins lymphoma.
[Donna Kavalier] "They go through it step by step and
if there's anything you don't feel comfortable doing, they say just tell us.
That's what we're here for. If we need to do it, we'll do it. We do the morning
blood drives so we can get the lab tests in earlier and that helps us that
we don't have to go down to the treatment center quite so early if I can do
that." 
Two years ago Rich completed chemotherapy and thought everything
was fine. Last fall he found two new growths. Since chemo wasn't taking care
of the problem, the decision came down to a bone marrow transplant. The good
news was he could be his own donor.
[Donna] "He -- they collected his stem cells himself.
He was given what's called growth hormone injections to kind of stimulate
your bone marrow to throw off these stem cells or to create more of them and
then you go in and it's kind of like a phoresis type thing -- I don't know
if you're familiar with that -- where they do platelets for cancer patients.
It's about the same thing but they collect these stem cells instead and usually
it takes anywhere, they say, from four to maybe 10 times and you do this every
day and you still keep doing these growth hormone injections every day. He
came in the first day and it takes about three and a half, four hours that
he is hooked up to the machine.
He collected
in one day which they were really amazed. They have only seen that a couple
of other times. This way he doesn't have to go through the donor post type
rejection and they find that you have an easier time if you can be your own
donor. "
After his treatment was completed, he was moved to the Lied
to start the daily routine.
[Donna] "This is what we do four times a day. Do a blood
pressure and a temp."
Donna by no means replaces the nurses. However, since she
is always by her husband's side, she is the first to notice any changes in
his condition. In one sense Rich was fortunate. His situation allowed him
to be his own donor. For other cancer patients or those in need of a lifesaving
organ, outside help, a donor of an organ or bone marrow, is needed.
[Kollen Thompson] "One of the ways we have chosen to
do that is to plant a tree in communities like Lincoln that have large populations
of people who have received a transplant and who have also been involved in
the organ donation process."
Tree-planting ceremonies around Nebraska last year gave organ
donation advocates a cause to celebrate. The medical professionals, the people
who received lifesaving donations, and the people who take comfort knowing
their lost loved one helped save another life shared their grief, their thanks,
and their stories. 
[Ceremony participant] "Our family was a donor family
about 12 years ago when we lost our 7-year-old son to a car accident on South
Street coming home from school. Little it be known that eight, nine years
later I would receive a kidney transplant so I have kind of a duel family
situation and whole heartedly agree to be an organ donor. Discuss it with
your families."
Kollen Thompson is the organ procurement coordinator for
the Nebraska Health Systems. Part of her job is going out and finding potential
organ donors. Back in her office, Kollen checks this screen for any new additions
to the list of possible organ recipients.
[Kollen Thompson] "The United Network of Organ Sharing
is a computer system located in Richmond, Virginia and every transplant enter
lists their patients on this list."
Right now over 64,000 people wait for organ transplants in
the United States. The demand for kidneys is the highest. 42,000 men, women,
and children are in need. Thousands more need new livers, hearts, lungs, and
bowels. In Nebraska just under 400 are on the waiting list. 130 for kidneys,
126 for liver. Dozens of others need other organs. Nationally, almost 4,000
people have died while waiting for a donor, rich and poor, young and old.
[Kollen] "When people think that it has something to
do with celebrity status, it has nothing to do with what we put people on
the list for. "
Kollen is never too far away from her phone. She knows at
any minute someone might call with a possible donor.
[Kollen] "I assist the physicians in coordinating the
efforts to actually go out to the sites anywhere in the United States at a
hospital where a family has consented to donation, and then we proceed with
the donation process in the operating room, remove the organs, and then bring
them back to the medical center here in Nebraska for transplantation."
But convincing people that organ donation is acceptable is
harder. Making sure people take the necessary legal steps is even more daunting.
The result? Some people who have their lives hanging in the balance must wait
a year or more. 
[Kollen] "It's approximately 500 days that someone would
wait for a liver transplant currently in Nebraska on the United Network of
Organ Sharing's list. That's a long time to wait. You can also get an organ
in a day or a week depending on how sick you are, how long you have waited,
and what your blood type is, and what your height and weight is and the potential
donor that comes up and matches with your body size and blood type."
[Mary Eckhout] "On April 10th of 1997 I was taking Clint
to Pius and I hit a patch of ice and slid and got broad sided."
At that moment Mary and Tim lost their oldest son, Clint,
and their life was suddenly turned upsidedown.
[Mary] "I don't remember anything and about all I remember
is being released to go to the funeral and then having to go right back to
the hospital."
Arriving at the hospital, Tim was confronted with some serious
questions even before he could absorb a horrible certainty. He was told the
hospital staff was keeping Clint alive in the hopes of donating his organs.
[Tim Eckhout] "I remember after them asking me and I
asked Mary when she was able to speak and we knew ahead of time that Clint
would do that."
[Mary] "What was so ironic about it was just a week
before my accident probably, I had -- I was talking to Clint and I had made
mention about organs, and I said, you know, I think that if anything would
happen to me and your dad, we would want our organs donated, and Clint said
that that was not what our church believed in, and I told him that he needed
to ask one of the priests at the church and find out because I said I'm sure
that that is okay. He did just that because Clint followed up and kept up
on things like that. He told me that he did ask and was told that that is
okay. He said if anything would happen to me, I would want to do the same.
You stop and think now, why did I have that conversation with a 15-year-old
son. You know, you just don't normally.
"
While it is tough to have this type of conversation with
a young adult, it is something more families should do. Right now only 10%
of the people who are able to donate organs do, in fact, donate organs.
[Mary] "Just our own opinion or my own opinion, I think
it's real selfish not to consider it. You never know where you're going to
be. We certainly didn't think we would be here two years ago and, you know,
I think you need to sit down and put your life and your family's life in perspective
and think what if it was something that we would need. I truly believe Clint
was in heaven long before we donated his organs so it's my opinion that we
just helped somebody else's family or kids."
At the time of our interview with the Kavaliers, day plus
five was going well. Low fluid count due to lack of interest in food has made
it a daily routine for Rich to receive a couple of bottles of liquids. His
platelet count was low but nothing to worry about. Rich will have a few good
and a few bad days, but every day is one step closer to being cancer free.